Rare Disease Day Morning Tea 2017

Thursday, February 16, 2017

A morning tea will be held in support of Rare Disease Day on Tuesday, 28 February 2017. Join us in making the voice of rare diseases heard.

The Rare Disease Day 2017 theme ‘Research Brings Hope’ recognises the crucial role that patients play in voicing their needs and in instigating change that improves their lives and the lives of their families and carers.

The Rare Disease Day 2017 slogan ‘Join us in making the voice of rare diseases heard’ appeals to a wider audience, those that are not living with or directly affected by a rare disease, to join the rare disease community in making known the impact of rare diseases. People living with a rare disease and their families are often isolated. The wider community can help to bring them out of this isolation.

Please show your support by coming to the Morning Tea, hosted by the Australian Phenomics facility and the Centre for Personalised Immunology.  The morning tea will be held in the JCSMR Tea Room at 10:30am on the 28 February 2017

Please bring a gold coin donation. All proceeds will go to Rare Voices Australia.

Rare Disease Day amplifies the voice of rare disease patients to that they are heard all over the world.

With research, possibilities are limitless!

People living with a rare disease are sometimes unable to find answers and medical solutions they need, often because of a lack of research. To illustrate this frustration, this year’s video draws a parallel with a routine that many of us go through multiple times a day – searching for an answer on the internet.

The video highlights how isolating it is when you search on the internet but receive the response ‘your search had no results’.
Read more about the Rare Disease Day 2017 video online!

Let's raise more awareness of rare diseases than ever before by sharing the video on all the social media channels and websites that we can!