Public Lecture in Support of rare Disease Day 2018
Harnessing The Power of Patient Samples to Diagnose, Understand and Treat Rare Immune Diseases
On the 28th February each year, the global rare disease community are shows their support for those who live with a rare disease.
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. The theme for Rare Disease Day 2018 is research, continuing on from 2017. The key ideas this year are the importance of patient participation in research and the role of researchers themselves. The patient community needs researchers. They discover diseases and develop treatments and cures. Rare disease research contributes to the development of diagnostic tools, treatments and cures, as well as improved health and social care for patients and their families.
In support of Rare Disease Day the Centre held a public Lecture on 28th February this year. Dr Julia Ellyard and Professor David Fulcher spoke about the rare disease research being undertaken by the Centre for Personalised Immunology in a joint lecture. If you could not attend the lecture, please click here to listen to the recording. The introduction was providded by Professor Matthew Cook, co-Director of the CPI.
Patient organisations in over 80 countries are holding event in support of Rare Disease Day. Australia also recognises this important day with many events occurring in and around this date. Rare Voices Australia is the national rare disease alliance for Australia.