Rare Disease Day 2016
The CPI and the Australian Phenomics Facility held a morning tea at the John Curtin School for Medical Research, ANU, Canberra on 29 February 2016 to show our support for Rare Disease Day.
“A rare disease is any disorder or condition that is a life-threatening or chronically debilitating disease, which is statistically rare. There are more than 8,000 rare diseases. Many have no formal title and are difficult to diagnose. Collectively, rare diseases are surprisingly common affecting an estimated 6-8% of the Australian population.” (Extract from Rare Voices Australia Fact Sheet)
This year's theme was Patient Voice recognising the crucial role that patients play in voicing their needs and in instigating change that improves their lives and the lives of their families and carers.
Rare Disease Day amplifies the voice of rare disease patients to that they are heard all over the world.
All proceeds raised were donated to Rare Voices Australia.