Rare Disease Day is held on the last day of February each year. This year, the CPI joined the worldwide community to raise awareness of rare diseases by holding a public lecture at the John Curtin School of Medical Research.
A rare disease is a life-threatening or chronically debilitating disease or condition which is uncommon in the general population. It is estimated that 6 – 8% of Australians are affected by rare diseases. Worldwide, 6,000 to 8,000 rare diseases have so far been identified. Researchers at the Centre for Personalised immunology, we work on identifying new, rare immune diseases and continue research on diseases already described.